Our Story
Bodie was born with Hypoplastic Left Heart Syndrome (HLHS). This means he was missing all of the structures on the left side of his heart - he essentially was born with only half a heart! In addition to the structural defect of HLHS, Bodie also was born with Catecholaminergic polymorphic ventricular tachycardia (CPVT), an inherited cardiac condition that causes sudden arrhythmias in response to adrenaline. The combination of these two...
Continue Reading »Bodie Bennett
Valley Center, CA
Transplant Type: Heart
Transplant Status: Transplanted
Goal: $100,000.00
Raised: $78,959 of $100,000 goal
Raised by 102 contributors
Updates
How can we help?
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https://youtu.be/4-tSpmNsCCc?si=BuRamAna0dA24ouS These are the posts that are hard for me to write, because we’ve never been good at accepting help. We much prefer to be on the giving... Continue Reading »
Life on the Struggle Bus
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The good news is, we're back home! We returned home Tues, the 11th, and have been settling back in since then. Physically, Bodie has recovered well, and his... Continue Reading »
The Lucky Ones
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Bodie was discharged Thursday night, to the local Ronald McDonald House! He had follow-up labs Friday morning, which looked pretty good. His CMV levels continue to trend down,... Continue Reading »
So this is fun…
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Bodie tested positive for Norovirus this weekend (yes, the gross cruise ship barfing disease that's all the rage this cold and flu season). The general consensus is that... Continue Reading »
Is there a specialist in the house?
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Man, has this kid been put through the ringer in the past 48 hours. Because CMV can affect so many organs, Bodie has been evaluated by Infectious Diseases,... Continue Reading »
This feels familiar…
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After getting RSV last month, Bodie just hasn't felt back to his usual self. We thought it was just the RSV taking him awhile to get over, but... Continue Reading »
So this is 15.
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Bodie turned 15 today. 14 and 1/2 years of living on hopes, dreams and prayers with a half a heart. And 8 months of living with a beautiful... Continue Reading »
6 month tune-up
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While Bodie's sister and his classmates are studying hard for finals and getting ready for Christmas this week, Bodie had to take his finals a week early so... Continue Reading »
When “Thank You” isn’t enough
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To our dearest donor family... I don't even know where to begin to thank you for the gift you selflessly gave to our family this past June. As... Continue Reading »
Dear New(ish) Transplant mom
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A love letter to the “new” (but actually very seasoned) heart transplant mom, This letter is for my dear friend, the seasoned Fontan mom who has suddenly found... Continue Reading »