Our Story
Bodie was born with Hypoplastic Left Heart Syndrome (HLHS). This means he was missing all of the structures on the left side of his heart - he essentially was born with only half a heart! In addition to the structural defect of HLHS, Bodie also was born with Catecholaminergic polymorphic ventricular tachycardia (CPVT), an inherited cardiac condition that causes sudden arrhythmias in response to adrenaline. The combination of these two...
Continue Reading »Bodie Bennett
Valley Center, CA
Transplant Type: Heart
Transplant Status: Transplanted
Goal: $100,000.00
Raised: $63,618 of $100,000 goal
Raised by 68 contributors
Updates
How can we help?
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https://youtu.be/4-tSpmNsCCc?si=BuRamAna0dA24ouS These are the posts that are hard for me to write, because we’ve never been good at accepting help. We much prefer to be on the giving... Continue Reading »
Stealing back our moments
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Bodie had his 4 month transplant clinic appointment at Stanford this morning, complete with an echo, blood draw, visits with multiple practitioners and a flu shot. Thankfully, all... Continue Reading »
Settling in
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Bodie and I have now been home a little over 2 weeks, and we're still settling in. I'm still finding boxes that never got unpacked - and still... Continue Reading »
High School here we come
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This morning, 3 months and 3 days after receiving a brand new heart, Bodie returned to school in person! We are so blessed to have a wonderful school... Continue Reading »
There’s no place like home
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On June 3rd, we left San Diego for what we thought would be a quick trip to Stanford for a handful of routine visits. 101 days, 42 nights... Continue Reading »
From a father’s eyes
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I have been so privileged to have had a front row seat to watching Bodie's extraordinary healing over the past few weeks, but Dusk hadn't gotten to see... Continue Reading »
Have Tour Guide, will travel
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Today, we were so blessed to have a very special friend in town, who gave us an insider's tour of San Francisco! Bodie's view of San Francisco this... Continue Reading »
Best 3 days ever
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Bodie has officially proclaimed the last 3 days the "Best 3 days ever." And with good reason. This morning, he had his follow up appointment with ENT and... Continue Reading »
IVIG – the gift that keeps on giving
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As predicted, Bodie's IVIG (Intravenous Immunoglobulin treatment) last week did a number on him. A lot of kids (and adults) who have to go through IVIG treatment have... Continue Reading »
Owner of a Happy Heart
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Bodie had his 2 month cardiac catheterization and biopsy yesterday, followed by his 3rd 12 hour IVIG infusion, and it all went really well! His pressures looked WONDERFUL!... Continue Reading »