4/2/26 The plan has once again changed. Ela went for a very thorough eye evaluation today to see if her eyes are ok and if the ophthalmology team...

Quick update…. We are actually still at the hospital attempting to get this whole infusion done. She’s been admitted. Her body is only tolerating running this infusion at...

Please pray with me as Ela undergoes this first experimental infusion heart transplant rejection treatment—Daratumumab—for her ongoing antibody mediated rejection. She’s had this 2nd round of rejection since...

After another set of labs (her poor arms are so bruised), chest x-ray, and impromptu visit with her heart transplant team it was determined that Ela is in...

Quick update…. It looks like Ela has some type of infection going on. All viral stuff came back negative. Team thinks based on her labs it is most...

Ela is scheduled to start the experimental Daratumumab treatment this Wednesday. These treatments will be weekly for the next 2 months. Our planned scenario is to come up...

It is so hard to believe that there is this unseen battle going on inside of Ela's body. Leslee, my parents, and I spent the whole day with...

This past week, Ela’s transplant team discussed her case. The most recent Allosure test (which is a pretty reliable indicator of rejection) came back higher than it should...

Ela had a Rituxinab infusion in January and an IVIG infusion this past Friday. These infusions are to help treat her antibody-mediated rejection that was better, but still...

Ela’s cath yesterday went relatively smooth with just a mild complication of an infiltrate from one of her IVs. Thanks for praying for the procedure. These are pretty...