After another set of labs (her poor arms are so bruised), chest x-ray, and impromptu visit with her heart transplant team it was determined that Ela is in...

Quick update…. It looks like Ela has some type of infection going on. All viral stuff came back negative. Team thinks based on her labs it is most...

Ela is scheduled to start the experimental Daratumumab treatment this Wednesday. These treatments will be weekly for the next 2 months. Our planned scenario is to come up...

It is so hard to believe that there is this unseen battle going on inside of Ela's body. Leslee, my parents, and I spent the whole day with...

This past week, Ela’s transplant team discussed her case. The most recent Allosure test (which is a pretty reliable indicator of rejection) came back higher than it should...

Ela had a Rituxinab infusion in January and an IVIG infusion this past Friday. These infusions are to help treat her antibody-mediated rejection that was better, but still...

Ela’s cath yesterday went relatively smooth with just a mild complication of an infiltrate from one of her IVs. Thanks for praying for the procedure. These are pretty...

Ela has been in such better spirits since Christmas. We are off precautions meaning she gets to leave the room, go to the playroom, go for walks, and...

Second Christmas at the hospital down! ...and hoping we don't have too may more of those in the future. In spite of everything, the Lord has been kind...

Biopsy results confirmed that Ela does indeed have antibody-mediated rejection (AMR). Thankfully, it’s grade 1 out of 3. However, this still means a pretty extensive treatment plan. She...