Blog

Paracentesis Day: Hoping for Relief

August 17, 2026Paracentesis Day: Hoping for ReliefThis morning, Remi is heading in to have his paracentesis procedure done.The buildup of fluid in his abdomen has been making him...

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A Rough Few Days — Catching Up

August 14, 2026A Rough Few Days — Catching UpWe wanted to check in with an honest update, because you all have been so faithful infollowing Remi's journey and...

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PICC Line Placed

August 5, 2026PICC Line Placed, A Small But Important StepA quick update from BCH: Remi had his PICC line placed today, and it went smoothly.He is a little...

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Update after 3 Weeks at BCH

July 31, 2026A Lot Has Happened: Update After 3 Weeks at BCH It has been a full 3 weeks here at Boston Children's, andthere is a lot to...

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2-Month Update

July 21, 2026 Back at Boston Children's: 2-Month Update We have returned to Boston Children's Hospital. Over thepast several weeks at home, fluid continued to build up inRemi's...

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Mixed News

July 3, 2026Remi Is Home, With Mixed NewsWe are so happy to share that Remi is back home and doing beautifully. He is happy,bright-eyed, and growing. You truly...

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A Difficult Update

June 19, 2026 A Difficult Update: Remi Has Been Readmitted We wish we had different news to share today.Remi was readmitted to our local hospital here in Vermontand...

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Home!

June 7, 2026He's Home! ��We have the most wonderful news to share: Remi is home.After weeks at Boston Children's Hospital, our boy made that long drive back toVermont,...

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Still Here: Still Fighting

June 3, 2026Day 24: Still Here, Still Fighting We didn't expect to still be writing from Boston whenwe posted last week, but here we are, and we are...

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Hanging In and Holding On

May 27, 2026Day 17: Hanging In and Holding On We have officially been on this journey for 17 days,with 13 of those days since Remi's Kasai procedure.Recovery has...

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Remini (Remi) Paradiso

Winooski, VT

Transplant Type: Liver

Transplant Status: Waiting for Transplant

Goal: $60,000.00

Raised: $5,982 of $60,000 goal

Raised by 58 contributors