While we’re thankful for another week of stable labs, the biggest challenge right now is helping Sofia gain back the weight she recently lost. She had been gaining...

There haven’t been too many updates lately, and we’re incredibly thankful that Sofia continues to remain stable. Last week she got to enjoy several fun hospital events. She...

Sofia’s PICC line procedure went smoothly! They were able to successfully rewire a new line into the same site, and she recovered well from anesthesia. We’re so grateful...

Sofia’s labs are officially clear! After much discussion, and because there is no infection and her skin has healed, she is tentatively scheduled for tomorrow morning to have...

Updates have been harder to write lately because we still aren’t able to share the news we’ve been hoping for. We’re still waiting.One of the biggest challenges right...

Sofia’s labs continue to look great, and her echocardiogram yesterday was stable. Today she proudly showcased her artwork at Art Fest alongside the amazing Arts for Life coordinator,...

Answered prayers today On Monday night, Sofia began experiencing more shortness of breath than usual, even at rest. She needed oxygen overnight, but her oxygen saturations were still...