Our Story

On November 4, 2019, our family was blessed with a beautiful baby girl named Ava Jaymes StemhagenJaymes because her daddy is a fan of basketball superstar LeBron James. Ava was born with pulmonary valve atresia with intact ventricular septum, a rare congenital heart defect. Because her little heart could not pump blood to the lungs adequately, she had to have open-heart surgery just days after her birth. Doctors surgically implanted a flexible plastic tube called a shunt to help her blood flow from one area to another. Then, Ava became a prime candidate for a heart transplant.
 
Five months later, she had to undergo a second open-heart surgery, which the surgeons attempted to correct several complications. If successful, the operations would have kept her steady for at least several years. Unfortunately, the operation did not work. After numerous trips in and out of the hospital over the following 6 to 8 weeks, Ava was airlifted to Seattle Children’s Hospital. There, they performed yet another procedure going up through a vein in her tiny leg, then put her on the transplant list. This new surgery helped keep her stable until a donor heart was received on September 17, 2020.
 
Ava has had several complications and setbacks after receiving her new heart. A few days after the transplant, the heart stopped suddenly. Compressions got it pumping again, but another procedure was needed to restitch and close a leaky valve. This eventually caused Ava’s chest to be reopened twice to resolve the problem.
 
We hope that the worst is over so that she has the opportunity to move and play like other babies and thus have a new beginning. Ava has been giggling in her sleep since she was born. We’re now hoping she has a chance to be happy while awake and experience life outside of a hospital bed for the first time in her little life. Thank you for your support, comfort, and encouragement.
 

The Children’s Organ Transplant Association (COTA) helps children and young adults who need a life-saving transplant by providing fundraising assistance and family support. COTA is the nation’s only fundraising organization solely dedicated to raising life-saving dollars in honor of transplant-needy children and young adults. 100% of each contribution made to COTA in honor of our patients helps meet transplant-related expenses. COTA’s services are free to our families, and gifts to COTA are tax deductible to the fullest extent of the law.

Ava Jaymes Stemhagen

Moses Lake, WA

Transplant Type: Heart

Transplant Status: Transplanted

Goal: $50,000.00

Raised: $18,739 of $50,000 goal

Raised by 74 contributors

Recent Contributions

Ota Harris

November 25, 2022

View All »

Photos

Winter 20/21

Posted

See All Photos »

Updates

Numbers showing less signs of rejection :) – January 26, 2021

Posted

Ava Jaymes rocked her heart cath, heart biopsy, balloon procedure, bronchoscopy, g/j conversion, and her EKG. Her heart numbers have improved and are showing less signs of rejection!... Continue Reading »

After two weeks of isolation… – January 22, 2021

Posted

After Ava’s one inconclusive covid test, we had two weeks of isolation. It was the worst and most consistently stressful two weeks! I still can’t believe it. I... Continue Reading »

Winter 20/21

Posted

Inconclusive COVID-19 test – January 5, 2021

Posted

If it’s not one thing it’s another with this Ava Jaymes. Her covid test came back inconclusive. She has no symptoms and hasn’t been around anyone that has... Continue Reading »

Getting closer – December 30, 2020

Posted

Ava Jaymes got kicked out of the hospital again.  She is still using her nasogastric tube (NG-tube) for feeding while her big gastrostomy tube (G-tube) heals.  She will... Continue Reading »

G-tube/feeding tube – December 28, 2020

Posted

Ava’s doctors got her in early to have her gastrostomy tube (G-tube) placed.   She will be admitted today at around 1pm and surgery at 3pm.  If everything goes... Continue Reading »

Sleep/breathing issues – December 14, 2020

Posted

Talked to Ava Jaymes doctor from the sleep clinic this morning. They wanted to reach out to us sooner then later about Ava’s breathing issues, she is having... Continue Reading »

Fall 2020

Posted

Sleep study – December 3, 2020

Posted

Ava had a sleep study last night. She is still mad at me. So today there will be lots of snuggles and apologies. -Stephanie- Continue Reading »

Subscribe for Updates

Name

Our Story

On November 4, 2019, our family was blessed with a beautiful baby girl named Ava Jaymes Stemhagen--Jaymes because her daddy is a fan of basketball superstar LeBron James. Ava was born with pulmonary valve atresia with intact ventricular septum, a rare congenital heart defect. Because her little heart could not pump blood to the lungs adequately, she had to have open-heart surgery just days after her birth. Doctors surgically implanted...

Continue Reading »

Ava Jaymes Stemhagen

Moses Lake, WA

Transplant Type: Heart

Transplant Status: Transplanted

Goal: $50,000.00

Raised: $18,739 of $50,000 goal

Raised by 74 contributors

Updates

Numbers showing less signs of rejection :) – January 26, 2021

Posted

Ava Jaymes rocked her heart cath, heart biopsy, balloon procedure, bronchoscopy, g/j conversion, and her EKG. Her heart numbers have improved and are showing less signs of rejection!... Continue Reading »

After two weeks of isolation… – January 22, 2021

Posted

After Ava’s one inconclusive covid test, we had two weeks of isolation. It was the worst and most consistently stressful two weeks! I still can’t believe it. I... Continue Reading »

Winter 20/21

Posted

Inconclusive COVID-19 test – January 5, 2021

Posted

If it’s not one thing it’s another with this Ava Jaymes. Her covid test came back inconclusive. She has no symptoms and hasn’t been around anyone that has... Continue Reading »

Getting closer – December 30, 2020

Posted

Ava Jaymes got kicked out of the hospital again.  She is still using her nasogastric tube (NG-tube) for feeding while her big gastrostomy tube (G-tube) heals.  She will... Continue Reading »

G-tube/feeding tube – December 28, 2020

Posted

Ava’s doctors got her in early to have her gastrostomy tube (G-tube) placed.   She will be admitted today at around 1pm and surgery at 3pm.  If everything goes... Continue Reading »

Sleep/breathing issues – December 14, 2020

Posted

Talked to Ava Jaymes doctor from the sleep clinic this morning. They wanted to reach out to us sooner then later about Ava’s breathing issues, she is having... Continue Reading »

Fall 2020

Posted

Sleep study – December 3, 2020

Posted

Ava had a sleep study last night. She is still mad at me. So today there will be lots of snuggles and apologies. -Stephanie- Continue Reading »