Ava Jaymes rocked her heart cath, heart biopsy, balloon procedure, bronchoscopy, g/j conversion, and her EKG. Her heart numbers have improved and are showing less signs of rejection!...

After Ava’s one inconclusive covid test, we had two weeks of isolation. It was the worst and most consistently stressful two weeks! I still can’t believe it. I...

If it’s not one thing it’s another with this Ava Jaymes. Her covid test came back inconclusive. She has no symptoms and hasn’t been around anyone that has...

Ava Jaymes got kicked out of the hospital again.  She is still using her nasogastric tube (NG-tube) for feeding while her big gastrostomy tube (G-tube) heals.  She will...

Ava’s doctors got her in early to have her gastrostomy tube (G-tube) placed.   She will be admitted today at around 1pm and surgery at 3pm.  If everything goes...

Talked to Ava Jaymes doctor from the sleep clinic this morning. They wanted to reach out to us sooner then later about Ava’s breathing issues, she is having...

Ava had a sleep study last night. She is still mad at me. So today there will be lots of snuggles and apologies. -Stephanie-

Look who I busted out of the hospital!!!! The doctors decided that there really isn’t anything keeping Ava in the hospital that I couldn’t handle (I think I...

Ava Jaymes did great at her CT scan yesterday. They got some new information and confirmation on what they were thinking. Her left lung airway is being pinched...

Today is a busy day for little Ava Jaymes. The doctors had to start crossing off possibilities for her breathing issues and need for all the oxygen. So,...