Our Story

On November 4, 2019, our family was blessed with a beautiful baby girl named Ava Jaymes Stemhagen--Jaymes because her daddy is a fan of basketball superstar LeBron James. Ava was born with pulmonary valve atresia with intact ventricular septum, a rare congenital heart defect. Because her little heart could not pump blood to the lungs adequately, she had to have open-heart surgery just days after her birth. Doctors surgically implanted...

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Updates

Numbers showing less signs of rejection :) – January 26, 2021

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Ava Jaymes rocked her heart cath, heart biopsy, balloon procedure, bronchoscopy, g/j conversion, and her EKG. Her heart numbers have improved and are showing less signs of rejection!... Continue Reading »

After two weeks of isolation… – January 22, 2021

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After Ava’s one inconclusive covid test, we had two weeks of isolation. It was the worst and most consistently stressful two weeks! I still can’t believe it. I... Continue Reading »

Winter 20/21

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Inconclusive COVID-19 test – January 5, 2021

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If it’s not one thing it’s another with this Ava Jaymes. Her covid test came back inconclusive. She has no symptoms and hasn’t been around anyone that has... Continue Reading »

Getting closer – December 30, 2020

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Ava Jaymes got kicked out of the hospital again.  She is still using her nasogastric tube (NG-tube) for feeding while her big gastrostomy tube (G-tube) heals.  She will... Continue Reading »

G-tube/feeding tube – December 28, 2020

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Ava’s doctors got her in early to have her gastrostomy tube (G-tube) placed.   She will be admitted today at around 1pm and surgery at 3pm.  If everything goes... Continue Reading »

Sleep/breathing issues – December 14, 2020

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Talked to Ava Jaymes doctor from the sleep clinic this morning. They wanted to reach out to us sooner then later about Ava’s breathing issues, she is having... Continue Reading »

Fall 2020

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Sleep study – December 3, 2020

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Ava had a sleep study last night. She is still mad at me. So today there will be lots of snuggles and apologies. -Stephanie- Continue Reading »