1 day post transplant.

Today is a day of rest. For Josiah, but also for all of us. After seeing him for the first time last night, it was like the last year melted away and we could breathe again. Last night was the first night I have slept in his room and not one alarm went off (besides pumps, but no issues with his vitals). It was a little nerve-wracking not waking up to warnings, but so, so good.

His gases and labs are all stabilizing and there is zero concern as of right now. He is starting to fight the sedation and is fluttering his eyes (especially when either Grandpa talks) and he is moving all four extremities, even his legs! He is also breathing over the ventilator, they are hopeful he can be extubated in the next 24 hours. They have started a diuretic to get rid of some of the fluid overload from surgery and that is going great. His oxygen is at 95% for the first time. For the last 11 months, it’s been around 75%.

God is so good. He is already like a new baby. He is so pink and warm. He is moving his legs which he never had the energy before to do and he’s not even awake yet. I didn’t realize how sick he looked until seeing him now with oxygen going where it’s supposed to.

Again, it would not be surprising if he went the other direction while they figure it the correct medication combination and we are prepared for a rollercoaster. Today, though, he is doing so, so good. For the first time, I’ve begun to let myself imagine what it will be like when we get to bring him home. It’s scary to allow myself to hope like that. It feels like I am jinxing us.

Thankfully, my hope is in Christ. I can’t imagine trying to go through this without that assurance.

“Yes, my soul, find rest in God; my hope comes from him. Truly he is my rock and my salvation; he is my fortress, I will not be shaken.”

??Psalms? ?62?:?5?-?6?