Since switching to continuous feeds, Sabrina hasn’t had a single episode of vomiting — it’s been about a week now — and she’s even started to gain a...

Just a small update for everyone following along. Over the week and a half Sabrina had been struggling with vomiting after her feeds, which was scary and exhausting...

Hi everyone, As the days and weeks in the hospital stretch on, it’s become harder to keep up with updates in multiple places. Every bit of energy is...

The last week has been rough. Sabrina had been eating so well—finishing her bottles, keeping everything down—and then, out of nowhere, she started taking a little less each...

Today marks 100 days in the hospital. One hundred days of monitors, beeping machines, and trying to keep our heads above water, our hope over our fear. It’s staggering to...

A couple of weeks ago, after getting the okay for outdoor visits, Sabrina got a playdate with her big brother, Audric! She had fun watching him run around...

Monday means another echocardiogram. Today’s ejection fraction came back at 24% — “no significant change.” On the one hand, I am so tired of those three words, because...

Sabrina has had to endure a lot of tough “firsts” — her first ambulance ride, her first CT scan (which the nurse optimistically hoped she could “hold still”...

We’ve gotten into a rhythm of testing every Monday: an echocardiogram to check Sabrina’s heart function and a BNP blood test to measure the stress on her heart....

Today I decided to start a medical blog page for Sabrina. Kyle suggested it a month ago, but I refused because I hoped there had been a mistake—that...