Our Story

Alex was born 3/26/19. We were aware he had a minor heart defect, and initially he seemed healthy. He was admitted to Children's Hospital of WI a few days after birth for high bilirubin levels. He underwent an extensive work up, and after levels decreased a bit he was discharged with close monitoring and suspicion of liver disease. Bilirubin started to rise again after a few weeks and he had...

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Updates

Update 6/28/2020

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LOOK AT THIS GUY!!!!   He is home.  Real home, not a fake home.  He is loving on his cat, eating more than he ever has before, crawling and... Continue Reading »

Update 6.19.2020

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Apologies for my silence as I have been dealing with my own losses recently.  But there is great news!  After so many setbacks and worries, Alex was discharged... Continue Reading »

Saturday, 5/30

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Alex is having a rough day,  Not as terrible as it could be, but that little face is not feeling great.  We take for granted our body working;... Continue Reading »

Thursday, May 28

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Jenna's update is below.  I am loving these pictures!  Alex has the best hair and expressions.  Even as a newborn, he could give looks that made everyone laugh. ... Continue Reading »

Tuesday, 5/26

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What better way to celebrate your 14 month birthday than eating REAL food?! Alex had a rough night last night with gas pain so is pretty tired today.... Continue Reading »

Saturday, 5/23/2020

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Check out these amazing pictures and Jenna's post from today.  It answers some questions.  Transplant is a complex thing in every aspect.  The fast that Shelby's body will... Continue Reading »

Wednesday, 5/20/2020

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This little dude extubated himself today and had to be sedated again.  I love how naughty he is sometimes!    OR is scheduled for tomorrow to, hopefully, close... Continue Reading »

Tuesday Update 5/19

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See below for Jenna's update.   If you can see her actual Facebook post, there is an adorable picture of Diego   I can seem to copy and... Continue Reading »

Sunday Update

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See below for Jenna's update from today.     We need this boy to get home!  I went to thier house today to feed the cats.  One of the... Continue Reading »