Tuesday, 5/26

What better way to celebrate your 14 month birthday than eating REAL food?!
Alex had a rough night last night with gas pain so is pretty tired today. His belly is getting used to moving and having stuff in it again. Gas drops have been helping though!
He had a busy day so far and had music therapy and speech therapy. They’re going to see how he does the next few days but realistically he’ll need a feeding tube put back in before we go home. Because of his milk allergy the choices we have for formula aren’t very tasty either. He’s very happy with solid food though!
Later he’ll have OT and PT and work those muscles! He’s quite weak and won’t be back to crawling or cruising for awhile.
His labs looked much better today after getting extra fluids yesterday! Shelbys liver is doing exactly what it should be doing ??
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