Jenna’s update is below.  I am loving these pictures!  Alex has the best hair and expressions.  Even as a newborn, he could give looks that made everyone laugh.  We are all excited that things are moving in a positive direction.  If you can help, please do.  Donate to COTA for Team Alex A so COTA can continue to help the family meets Alex’s needs.  You support for the COTA campaign is an amazing gift to Alex and his family.

 

 

God is good and Alex continues to do well!

He’s eating really well! It’ll take some time for his stomach to grow to normal size so he eats small amounts like 8 times a day

He doesn’t really want to drink so that’s a skill we will work on at home. I’m trying to get insurance to cover a formula made from real food instead of all the crap in pediasure which should help with overall tolerance. He was able to stop TPN today and all his meds are through the NG or oral!

We are looking at discharge next Tuesday or Weds so please pray for that to happen and that he continues to do wel!

Everyone is very happy with how he’s doing!