Our Story

For those that do not know, Haven is 13 years old and was born with Hypoplastic Left Heart Syndrome in 2006. By the age of three, she underwent four open heart surgeries to repair her heart and countless closed heart procedures. Haven received a multi-sited pacemaker at the age of five and had it recently replaced in April 2020. Haven and her family have traveled the nation to see specialists...

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Updates

Monday, May 3rd

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As was stated in the previous post, Haven was discharged on Sunday, April 25th after being in hospital only 6 days. They were asked to stay in Seattle... Continue Reading »

Monday, 4/26: Great news!

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Haven and Tanya were discharged from the hospital on Sunday night! Her lab work, EKG, and Echo results all came back perfect at the end of last week.... Continue Reading »

Thursday, 4/22

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Havens' fever has subsided and she had another good day today! The nurses removed one chest tube, her external pacing wires and her arterial line today as well.... Continue Reading »

Wednesday, 4/21

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The doctors performed an echo today to check the function of Haven's new valve and overall heart function.  The valve is working extremely well and shows no signs... Continue Reading »

Tuesday, April 20th: Recovering well

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Haven was taken off the ventilator last night, and though they had a rough night, she is recovering well today. Her chest tube fluid output is normal, and... Continue Reading »

Recovering After Surgery

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Haven's surgery lasted 11.5 hours today.  She is back in her room and recovering, but she will continue to be on a ventilator so her body can rest. ... Continue Reading »

Surgery has started

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Haven went back for surgery at 8 am this morning. The surgeons have to be extra careful right at the beginning of the procedure.  The right side of... Continue Reading »

Valve Surgery on Monday, April 19th

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Haven will be back in Seattle tomorrow for a day of lab work and tests.  If those results are to the surgeons' liking, they will proceed with the... Continue Reading »

3/28: Surgery scheduled in April

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Haven and Tanya will be heading back to Seattle on April 15th to address her tricuspid valve leaking.  She will have preliminary appointments and multiple lab draws starting... Continue Reading »