It’s hard to believe that just 8 short months ago there were times that we didn’t know if we would ever hear Rafe laugh again, talk, or if...
Continue Reading »Blog
Summer Fun
A lot has happened since our last post. Rafe celebrated being six months post liver transplant on June 18th and we have spent the month celebrating each and...
Continue Reading »Cornhole for COTA for Rafe’s Fight
Cornhole for COTA for Rafe's Fight was a great success! Lost Street Brewery hosted a cornhole tournament for COTA for Rafe's fight. We had a great turnout. Despite a...
Continue Reading »ER Visit/Croup
Rafe woke up at 2:00 AM Saturday morning not able to breathe. He woke up out of nowhere with "stridor" breathing saying he couldn't breathe and felt like...
Continue Reading »What caused Rafe’s liver failure?
The number one question we get asked is- What happened? What caused Rafe's liver to fail? Why, in only 18 days, did our seemingly healthy little boy need...
Continue Reading »May Check up / Hospital Stay
Rafe had a doctors appointment Tuesday with his doctor in OKC. It was his first time for labwork since removing his PICC line. He had a really hard...
Continue Reading »PICC line is finally removed!!
It’s been a big week for Rafe! His doctors office called and said that his labs look great and switched his biweekly labs to monthly. Since they were...
Continue Reading »Stomach Virus
We had a little scare today and ended up taking Rafe to the ER at TMC. This morning, he didn't feel well when he woke up and wouldn't...
Continue Reading »3 Month Checkup Update!
We are home from Cincinnati and Rafe's appointment went great! Although it was a long trip, we had fun. Rafe was absolutely perfect and didn't complain once. He...
Continue Reading »Cincinnati Bound 3 Months Postop
We are driving to Cincinnati today for Rafe's three month checkup!!! His appointment is tomorrow afternoon and we hope to get a good update. His steroids make it...
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